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LOL, trying2doright, God bless yr mom!... With the tentative diagnosis of LBD, my mom had all the usual markers of dementia, including incontinence, falling down, not knowing if it was day or night, and eventually not even knowing she was living in her own house. We put signs up all the room doors. She couldn't live alone, had used up most of her savings, bypassed assisted living, went on Medicaid, and was placed in a nursing home memory care unit... She lived in her house for a couple of years while the hallucinations went on, seemingly normal enough, but puzzled that people she knew were visiting, coming and going, even her parents who died decades ago. I would get weird phone calls all hours of the day and night, just wanting to chat, and mentioning that the Kardashian baby had been running up and down the hallway all day!.... She adjusted well to the nursing home, as far as anyone can tell. She never once asked about her house or going home, she is very good natured and the staff there loves her. Lucky for us both, huh? (There are some poor souls there who seem in such terrible distress!) She can't really follow a conversation and babbles about things in the past, but she still recognizes people....anyway, good luck with you and your family, God bless.....I kind of miss my mom. There were a few good years, and we had some good conversations then, before things got really bad.
Hi, Lassie, Thank you for your response. Mom's hallucinations and delusions have become quite real to her and very involved - at 94 she thinks her deceased godmother bought her a new car and a new piano. She is planning a refresher on driving lessons and reapplying for her driver's license and is going to go back to giving piano concerts. Some of her past is mixed in with her delusions and hallucinations for the future. Did your mom go into a nursing home because of the hallucinations and did she transition well? Thanks for the feedback!
Trying2doright, we took mom to a neurologist who did tests and a brain scan, and he told us she had Lewy Body dementia because of the hallucinations. (She's had them for the past 4-5 years and is now in a nursing home. ) The brain scan didn't show anything AFAIK, but nothing can be proven except after an autopsy. Mom took Namenda and an anti-depressant. She was never bothered by her hallucinations, they were benign, people she used to know or saw on tv shows, she was more puzzled as to why they were in the house and why they came and went so often.
STEPHINA: Another valid reason for the "seeing of things" could be hallucinations from medications. That is quite common, actually. If an elder is dosed Morphine, they will experience visual hallucinations. Bear in mind that there are other hallucinations, such as smelling things that are non-existent odors, e.g. smoke.
When my MIL was in the ICU a few days before she passed, she said she saw Jesus sitting across the room. Her daughter asked her what did he look like. She described a popular image that most have seen. She described it in detail. Then she said " When I saw him there, I knew everything was going to be alright." She never mentioned seeing Jesus or anyone else again. She died about three days later.
What someone "sees" can depend on many things. Delusions are based on something that exists; hallucinations are things not based on anything tangible--hallucinations are out of thin air. Even medical personnel can miss this differentiation. When someone is approaching the end of their life, they can see things, both or either of those. OR, it can be triggered by medications--so have those checked. It can also be triggered by infections, like UTI's--so have that checked. It can also be part of nutritional deficiencies--mental ills, psychotic breaks, etc. can definitely be made worse by nutritional deficiencies. Chronic pain can send someone into seeing things, too. If your elder is having a pleasant time, assess what might be causing it, for sure, but, in general, playing along with a pleasant thing the elder imagines, can help decrease stress; telling them they are imagining it, can cause more stress..especially if they cannot mentally process information very well anymore. Example of a delusion: ==One patient kept seeing a monkey on the wall of his room. None could figure it out, and it was distressing for him. So, I took time to sit with him, and ask more questions....where on the wall was it? What does it look like to you? I told him politely, that none of the staff could see it; to help, we needed him to describe it. With a few more questions, and physically pointing at the wall to find it, found the source triggering his drugged mind to form the image of a monkey on the wall: the TV bracket plate, with 3 bolts into the wall, looked like 2 eyes and a mouth to his morphined-brain. Once he understood how that was happening, and what it really was, he was OK..no more stress...he was also motivated to get off morphine sooner than later. Elders with compromised mental function, cannot follow or remember that kind of thought process as well. Therefore, playing along, as long as it is pleasant, can be helpful. If it's unpleasant, then some other solution needs used.
6 months before my mother pass she would all ways stated that her brother which had pass away about 20 years ago was sitting watching TV with her. I and the social worker would just listen to her believing that it was her disease. As months pass my mother became real delusion and her health decline. I could not care for her by myself and she was place in an NH. She only last for 6 month. All in saying with my experience with the elder I really believe this is a sign that life is towards an end , specially when love ones are seeing their decease love one.
Thanks Lassie, I have done some reading on LBD (Lewy Body Dementia) as it has come to mind before. How was your mom diagnosed with Lewy Body? The healthcare community that I have dealt with seem to think that there is no import to trying to identify the class of dementia. I just get: It is what it is! Has the diagnosis made any difference in your mom's treatment or medications? Thanks!
Lassie, yes my friend's father would hallucinate about other things. I just mentioned one situation her poor father suffered from. I guess the $10,000.00 money figure upset him so much that he never felt the same way when Regis and Lee asked him to call them. Really don't know how long it would last. You are right about the hallucinations happening over and over. I don't know exactly what helped him stop. It also seemed his dementia diagnosis was compounded with the hallucinations he would get when he had UTI, urinary tract infections. The delusions and hallucinations can vary from person to person. We had one woman who had horrid hallucinations like seeing a hole in a wall with an eye peering through it. Fortunately, the doctor was able to prescribe anti-psychotic and sleeping medication for her. The medications had to be modified from time to time. Even though there were "black box warnings" in regard to certain medications the family decided they would rather have her comfortable than fearful all the time.
My friend had a phrase for these situations..."join them on the journey." It does no harm. My Aunt saw children she did not know they laughed and played in the house, she saw family and once a dog came on her bedroom and rested his chin on her bed next to her hand. Most of the time she knew it was not real, but sometimes she believed they were there. As others have said you can ask what they are doing, how she feels about them etc.
That's rather comical, RachelSmitt, but even so, their deteriorating brains are causing all of this. I am surprised you never heard about Regis and Kathy Lee again, because when they get an idea stuck in their heads, they don't 'learn' anything despite actual 'proof'. I am surprised the delusions didn't just keep happening over and over. I bet he latched onto some other crazy idea about something else. (My mom lived quite happily with 'the Kardashians' in and out of her house. Later, they 'left' and her dear mother-in-law 'moved in'. I never heard about the Kardashians any more, but my other grandmother? That was something new!)
Hello. I had a friend whose elderly father with dementia would hallucinate about celebrities on television on almost a daily basis. He would throw a fit about Regis and Lee wanting him to call them by phone. The hallucinations were very real to the poor man. No one could convince him otherwise. It went on every morning until a caregiver wheeled him in his wheelchair to a phone. The caregiver offered to call and ask what Regis and Lee wanted from him. The caregiver made a fake call acting like she was being connected/transferred to Regis or Lee by the operator. The caregiver told the elderly man that Regis and Lee were asking for $10,000.00 and the elderly man yelled, "No! I am not giving them $10,000.00!" We never heard about Regis and Lee again.
My mom had Lewy Body dementia and 'saw' lots of people from the past, or at least swore they were living in the house, unseen. If the back bedroom door was ever shut, she said people from work were sleeping there, or my brother, or her parents, or even people on tv. Just smile and nod, change the subject. No use arguing. Even if you can get them to agree 'dad' died years ago, he will still show up again.
My 94 y/o mother with dementia also sees writing in the air, writing on walls, on pillows, etc. She also talks constantly to people not there. She actually talks totally sensibly to me or others one minute and to her imaginary buddies (or hecklers) the next. She has a very involved relationship with her godmother (who has been deceased for decades) and whom she believes is buying her a new grand piano, others from her past, and also some imaginary man whom she is going to marry and his family. While uncomfortable the problem is these conversations call her to act - like they have asked me to their house and I have to leave now, or they are waiting for me downstairs. We take her out to see/meet them because she becomes so insistent and (obviously) there is no one there, which is upsetting to her. She they shifts into a conversation with them where they tell her they had to leave or will be back later. The calling her to action is actually a safety concern because I they ask her to meet downstairs sometimes at night. She now has 24 hour aides, some deal ok and others (though supposedly trained) get freaked out or wiggy about it. I am a person of faith and I do believe in the after-life and communion of saints, so I wonder at times, but I do not believe that loving deceased relatives would call her to do something that is unsafe and that it is delusions. Mom gets very angry when I cannot go along with the delusions due to practical safety issues. I then become the outsider intent on keeping her from happiness. It has been an increasingly difficult issue since it is making her less cooperative and compliant. Mom did have a UTI for which she was hospitalized for 2 weeks, however she has not recovered from the delusions, despite medications. Has anybody dealt with the delusions calling the elderly dementia person to some kind of action or plans? How to stay on her good side without compromising her safety? Thanks!
If she has dementia, I agree with all of the excellent suggestions above. It's best to 'live in their world' as much as possible. If she doesn't have dementia, or has any other types of hallucinations too, think about what meds she is on - is there any one med that is relatively new - like the last few months? Some meds have hallucinations as a side effect. Some diseases do too. But otherwise, it doesn't hurt to just "go" with it. It will be more comforting to her, and sometimes people do see their loved ones who have gone on when it's getting close to time for them to meet them.
I agree with jeannegibbs. Seeing a dead relative does not mean imminent death. My mom has taken to "seeing" different relatives, including my dad, in the last 3 months or so. Now I'm not God, but she seems quite healthy physically and does not seem like she will be leaving the planet really soon. I agree that it is the dementia and the general moving backward into the past. Try to go along with whatever your mom is seeing/saying as much as possible. The challenge with that approach is keeping your own insanity intact!! LOL. Good luck.
My MIL used to see my FIL sitting in a chair by her bed in the nursing home. We would just agree and not pursue the matter much farther than that. If your mom starts to obsess about seeing your dad's images, it may be time to speak with her doctor.
cwillie, that's how I found out about it in the first place; I ran across it in doing research on mom's vision loss from her eye problems because it did seem to happen within a few months after she lost her sight - or pretty much all of it - and it was distressing, but since the whole thing was somewhat gradual, it's hard to pinpoint how long it was but it does seem like we quit hearing about it after a point so maybe it did just go away, but, still, her eye doctor that we asked about it didn't have any idea what we were talking about. And, yes, that was somewhat what was distressing to her, is that she seemed to be somewhat aware that what she was seeing wasn't real, so then what was going on; I was glad to find out about the CB syndrome, just wish the doctors would have known; think that would have helped - thanks
My mother did the same thing after my dad past. It made her smile, she loved and missed him so much. We went along with her, who is to say she didn't see him. If it brings her comfort so be it.
Debdaughter, it is probably best to get info by doing a web search in order to get a clearer understanding if this applies. From the CNIB site: "Charles Bonnet Syndrome (CBS) is a common condition among people with serious vision loss characterized by temporary visual hallucinations. "CBS hallucinations tend to begin in the months immediately following a loss of sight. Hallucinations can be very distressing, but aren’t usually permanent. Symptoms generally decrease in frequency after about a year to 18 months, although some people may have the condition for five years or more. "Images can appear at any time and can last from just a few seconds to several minutes. "People with CBS hallucinations are usually aware that what they’re seeing is not real. CBS hallucinations only affect sight, which means that people with CBS don't hear, smell or feel things that aren't there."
If you're a spiritual person, you understand the 'fine line' between this life and the other side. And you realize that it could be narrowed in alzheimers/dementia. My grandmother once told our family she saw her sister. (Who had already been gone for many years.) My uncle made a joke of it, asked 'Is she still in that big brass box we bought her?' Everyone laughed but me. I choose to believe they sometimes see more than we do.
Say.. Tell him I said hi and I love him That must be a comfort to you He must really love you to come and say hi If seeing him gives her comfort or it does not seem to upset her there really is no harm in going along. If it upsets her then you might want to discuss it with her doctors
Having worked in the medical field for 30 plus years,yes patients would see loved ones and see angels.Does not mean it is the end.Allot of times the patient would be trying to reach for the image(s).I had one nasty lady die with the most angry scared expression.Others very peaceful and smiling.Does not necessarily mean it is the end.Do not argue just go along with it and if it is her time she will be happy and peaceful.Good luck and God bless.
cwillie, can you tell me more about the Charles Bonnet syndrome; my mom started seeing people as well; upset my dad to no end, but I ran across this when researching her eye problems she was having but her eye doctor didn't have a clue what I was talking about, so I didn't know what to do
At one time my mom was seeing a lady she didn't recognize standing in the corner of the room. The lady would always stand in the same corner, peacefully, and just watch what was going on in the room. This continued on and off for several days before I realized the "lady" was a reflection in a glass cabinet door. Open the door slightly and the lady disappeared. Vola' ..
My mom, who just passed recently, kept saying she was seeing babies, so I would sometimes be walking through the living room and she'd gasp, saying,'Oooh, you almost stepped on her/him!' I finally started joking with her, saying,'You know, we really oughtta do something about these people leaving all these babies laying around!' That kind of diverted the attention to the fact that she was seeing things, while not telling her that she was. But sometimes it was creepy when she would point next to me and say that this one must like me cuz its smiling at me. Just humor the occurence, while not patronizing the person.
Well, it sure doesn't necessarily mean the end is near. My mom's been seeing writing in the air, writing on walls, on pillows, etc. She talks constantly to people not there. She actually talks totally sensibly to me or others one minute and to her imaginary buddies (or hecklers) the next. When things get unpleasantly rowdy for both of us, I bring her back to the present, and she always thanks me. If it gets funny, we both laugh.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
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You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
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Delusions are based on something that exists; hallucinations are things not based on anything tangible--hallucinations are out of thin air.
Even medical personnel can miss this differentiation.
When someone is approaching the end of their life, they can see things, both or either of those. OR, it can be triggered by medications--so have those checked.
It can also be triggered by infections, like UTI's--so have that checked.
It can also be part of nutritional deficiencies--mental ills, psychotic breaks, etc. can definitely be made worse by nutritional deficiencies.
Chronic pain can send someone into seeing things, too.
If your elder is having a pleasant time, assess what might be causing it, for sure, but, in general, playing along with a pleasant thing the elder imagines, can help decrease stress; telling them they are imagining it, can cause more stress..especially if they cannot mentally process information very well anymore.
Example of a delusion:
==One patient kept seeing a monkey on the wall of his room.
None could figure it out, and it was distressing for him. So, I took time to sit with him, and ask more questions....where on the wall was it? What does it look like to you? I told him politely, that none of the staff could see it; to help, we needed him to describe it. With a few more questions, and physically pointing at the wall to find it, found the source triggering his drugged mind to form the image of a monkey on the wall: the TV bracket plate, with 3 bolts into the wall, looked like 2 eyes and a mouth to his morphined-brain.
Once he understood how that was happening, and what it really was, he was OK..no more stress...he was also motivated to get off morphine sooner than later.
Elders with compromised mental function, cannot follow or remember that kind of thought process as well. Therefore, playing along, as long as it is pleasant, can be helpful. If it's unpleasant, then some other solution needs used.
And, yes, that was somewhat what was distressing to her, is that she seemed to be somewhat aware that what she was seeing wasn't real, so then what was going on; I was glad to find out about the CB syndrome, just wish the doctors would have known; think that would have helped - thanks
"Charles Bonnet Syndrome (CBS) is a common condition among people with serious vision loss characterized by temporary visual hallucinations.
"CBS hallucinations tend to begin in the months immediately following a loss of sight. Hallucinations can be very distressing, but aren’t usually permanent. Symptoms generally decrease in frequency after about a year to 18 months, although some people may have the condition for five years or more.
"Images can appear at any time and can last from just a few seconds to several minutes.
"People with CBS hallucinations are usually aware that what they’re seeing is not real. CBS hallucinations only affect sight, which means that people with CBS don't hear, smell or feel things that aren't there."
Tell him I said hi and I love him
That must be a comfort to you
He must really love you to come and say hi
If seeing him gives her comfort or it does not seem to upset her there really is no harm in going along.
If it upsets her then you might want to discuss it with her doctors
I finally started joking with her, saying,'You know, we really oughtta do something about these people leaving all these babies laying around!'
That kind of diverted the attention to the fact that she was seeing things, while not telling her that she was.
But sometimes it was creepy when she would point next to me and say that this one must like me cuz its smiling at me.
Just humor the occurence, while not patronizing the person.