Are you sure you want to exit? Your progress will be lost.
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Fall risks, spoiled food, or other threats to wellbeing
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I. How We Work in Washington. Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services. APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
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Severe Sjogren's Syndrome, severe malnutrition from inability to eat and digest food. My mouth doesn't produce any saliva. It's extremely uncomfortable and I'm having a hard time understanding what I did to deserve this horrific disease. It's a very cruel disease.
I'm utterly appalled at my body's ability to keep suffering when I'm so desperate to be released from it. :(
Alonenscared, Are you making a suicide attempt by VSED? (Voluntarily Stopping Eating and Drinking).
You have posted a failed suicide attempt in the past: "I was on my deathbed in October of 2019 but my former friend threw me under the bus after telling me how to exit life on my own terms. I ended up in hospital where I was brought back to this misery."
Call a suicide hotline, or your psychiatrist and get admitted to a psychiatric facility.
Even though some caregivers on this forum are mandated reporters, no one has the ability here to intervene on your behalf.
So sorry for your illness and pain. But you are not terminal.
I feel your pain, as I am in constant pain myself. The difference is even in constant pain I do not want to die. What is beyond this existence? Please get some help , if you are not terminal find a good Dr, ( which in my case is not easy). I hope you find peace in this life, and do not give up.
I'm sorry for your situation. Would you care to share what your medical condition is that makes finding a good doctor difficult? Have you ever tried a Functional Dr?
Alonenscared - You are not alone. We're here. Your loved ones who have passed are around you but you just can't see them.
The sick and ravaged body you have is just a temporary shell that houses your soul which is pure and perfect.
If it's really your time to go, may you cross over in peace. But if you still have a purpose to remain on this physical plane a little longer, may you have the strength to get well and fulfill that purpose.
The process of VSED: You cannot do this alone. You will need 24-hour care during this process, and ongoing hospice care or oversight by your physician. Begin by discussing your end-of-life wishes and concerns with family, caregivers and your primary physician.
Not sure, with all your symptoms of Sjogren's that you are emotionally and mentally able to make a decision to commit suicide by not eating and drinking.
Concerned that you will do more harm to yourself and fail, ending up in the hospital again, starting at the very bottom of life's choices, making it harder on yourself.
Your decision to do this alone when it cannot be accomplished alone is only one indication that you are not thinking straight.
A person does not have to die alone, or be extremely distressed while dying. Keeping in mind that you are doing this to yourself....
Will you consider reversing your decision to a later time?
Please look up endoflifewa.org for a very good detailed site for both VSED (legal) and Death with Dignity (legal in only 10 states). There are many resources accessible through this nonprofit organization. I've recently seen one of their live presentations and was greatly impressed. VSED is not to be tried alone ; you need comfort care on the journey. If you cannot get that help you should definitely reconsider your decision to VSED.
Have you been tested for other autoimmune diseases? My Cardiologist diagnosed & treats me for Dysautonomia. He told me that SS, Dysautonomia & hEDS are a triad of diseases that can be seen with MCAS (Mast Cell Activation Syndrome). Have you been tested for any of these diseases? My heart goes out to you.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
I'm utterly appalled at my body's ability to keep suffering when I'm so desperate to be released from it. :(
It sounds like you would qualify.
Where do you live now?
You did nothing I am sure to bring on this difficult situation you are in.
So much suffering in the world now.
Prayers for relief and peace.
Are you making a suicide attempt by VSED? (Voluntarily Stopping Eating and Drinking).
You have posted a failed suicide attempt in the past:
"I was on my deathbed in October of 2019 but my former friend threw me under the bus after telling me how to exit life on my own terms. I ended up in hospital where I was brought back to this misery."
Call a suicide hotline, or your psychiatrist and get admitted to a psychiatric facility.
Even though some caregivers on this forum are mandated reporters, no one has the ability here to intervene on your behalf.
So sorry for your illness and pain. But you are not terminal.
Sorry that you have Sjogren's. The dry mouth sounds very difficult. I imagine you have tried meds or other things to try to improve that situation?
The sick and ravaged body you have is just a temporary shell that houses your soul which is pure and perfect.
If it's really your time to go, may you cross over in peace. But if you still have a purpose to remain on this physical plane a little longer, may you have the strength to get well and fulfill that purpose.
Have you read a blog called "Diary of a Sjogren"?
Achieving Goals While Being Chronically Ill
by Rena Newman | September 13, 2021
Have you been in contact with the Sjogren Foundation?
Keeping you company will require your participation. Let others know you are still here.....
What time do you get up and out of bed, if you do?
You cannot do this alone. You will need 24-hour care during this process, and ongoing hospice care or oversight by your physician. Begin by discussing your end-of-life wishes and concerns with family, caregivers and your primary physician.
Not sure, with all your symptoms of Sjogren's that you are emotionally and mentally able to make a decision to commit suicide by not eating and drinking.
Concerned that you will do more harm to yourself and fail, ending up in the hospital again, starting at the very bottom of life's choices, making it harder on yourself.
Your decision to do this alone when it cannot be accomplished alone is only one indication that you are not thinking straight.
A person does not have to die alone, or be extremely distressed while dying.
Keeping in mind that you are doing this to yourself....
Will you consider reversing your decision to a later time?
🙏🏼🙏🏼 For you, I hope you find the peace you seek.