In 2013 my mother was diagnosed with ALS we started seeing changes in him about the same time. My mother thought this was because of her diagnosis. Took him into Dr did a MRI and he was having UTI at the time. So we knew things weren’t good. Then my mother passed 2015 and he has just been getting worse. We have days I think I’m going crazy because he’s my old Dad with normal behavior. But lately he keeps making strange noises and saying Ya Ya ya all time Morning noon and night. He has to be told over and over to go to the bathroom or he’ll just sit and wet himself. And when tell him get up he’ll start shouting toilet toilet toilet. Anything I can do?
As to the bathroom issue --- Just bring him on a regular schedule. You really can't tell someone with dementia to do this action. Step over to him and gently say, come on Dad, it's time to go to the bathroom now. Help him up and bring him in.
This disease is frustrating in that behaviors constantly change as well as the person's ability so the caregiver is constantly challenged in how to handle things.
Good luck and visit us often, many here have 'been there and done that'. We learn from each other.
If he's up a lot at night, I'd discuss it with his doctor, as a sleep aid might be explored. Crying out, making odd comments, repeating things, is not uncommon. Reading a lot and watching videos on You tube can provide ideas on how to distract or occupy their time. Sometimes activities, activity boards (some found online) can amuse them for a while. But, most activities require direct supervision and direction, so it can be quite time consuming. I know that my LO used to color, but, you had to stay right with her, because she would put it down in less than 1 minute, if someone wasn't with her, encouraging her to continue.
But, as far as preventing the shouting or repeating.....I've never heard of way to stop that. If he's overly anxious or agitated, medications might help, but, I'd discuss that with his doctor. Sometimes, these are just a result of the brain damage and it comes in phases. For a while my LO repeated things A LOT. Then that stopped and now she can't carry on any conversation. This progression took years, though.