Eight days ago I put my husband in hospital for medicine re-evaulation as he had started to become aggressive. Following discharge he was then to go to a nursing home. He was still able to walk (but slower) and talk. He loved to eat ice cream and honey buns but now is having difficulty eating. He began to eat slowly and everything needed to be soft and sweet. I was also begining to need to help him with a spoon. I could not visit him because of COVID and I have not been able to talk to a Dr yet.
Nurses now say He has stopped eating. He has not eaten any thing but Boost shakes to take pills but the facility ran out of Boost beverages three days ago. Now they tell me he can't swallow. They put ice cream in his month and it just runs out. He is not swallowing so they are not giving him any thing to drink. I don't understand how he changed so fast. I figured he would go to NH for at least 6 months to a year. I do know he was in stage 6. Anyone else ever have LO stop eating while still mobile? I will be able to talk to Dr or someone tomorrow hopefullly.
I don't know about "the usual progression" but I wonder if perhaps he's had a stroke that accelerated his decline.
((((Hugs))))
Sending prayers and hugs your way. I know how tough all this is. I lost my mother in Feb to advanced dementia and heart failure and believe she was having small strokes in the final months of her life. Her passing was peaceful thanks to hospice.
On 8th hospital called and said his insurance would cover hospice but he no longer was qualified for hospital stay. They brought him home next day (10th)in ambulance, hospice set up bed ect. Said they would have aid come Monday -friday. My husband could no longer walk,or get up. Now he acts like he is in pain all day. (his legs) want put them down strait. he has been awake all night. Hospice was suppose to come yesterday also they were to order something for pain. No one yet. A social worker from Hospice is suppose to come today at 11am. Any input on leg situation?
We do have a NH working on referral from Hospice. Pray we get him moved.
He is in Jehovah gods memory and Jesus will bring him back in the near future
Another thing that helped tremendously was my mom being accepted to hospice. I am so relieved to know that my mom is seen by a nurse 2x a week. It was like pulling teeth to get anyone to reply to me from her memory care. But her hospice nurse always keeps in touch with me-even if it’s just a quick text letting me know how she’s doing. And we come up with solutions to problems together. A lot of times she will FaceTime me when she’s with my mom, which really helps. Another thing that was a game-changer for me regarding hospice-they have a different set of rules and regulations (at least in my state). I had never seen my moms room for the first 6 months-but because she’s on hospice I can do a room visit, which is so great because I started being afraid to take her on outings because she fainted a couple times. Also I was able to see her room and what she needed in there. If your husband is currently in the hospital and will transition to a care facility-I believe you will be assigned a social worker. I think they may be able to help you regarding hospice.
I can’t imagine how hard this must be for you. It has absolutely broken my heart to go through this with my mom. But it must be so devastating when it is your husband. There is that feeling of being in limbo. You are not able to start the grieving process because they are still technically here, but at the same time they have been gone for a while now. I hope you get some support and assistance and have people to lean on. Im so sorry you are both going through this.
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