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My mom passed away but I am wondering if anyone else had or is dealing with this. That was so difficult for her, and me. The weird thing is there is nothing online saying how the handle the two at one. My mom was on 530mg equivalent of morphine. She was in pain all the time and obsessed with her oxy even before she had dementia. If she managed to take all her pills before her prescriptions could be refilled, time just stopped. I became even more hyper focused on her needs.
I am really just looking for anyone else who has had the same experience.

Someone has to take over her medication. Its really hard to tell if a person is really in pain when Dementia is involved. A scrape will have them thinking there were dying like a small child. Hopefully Mom is seeing a Neurologist. Ask him/her this question.
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lealonnie1 Jul 29, 2024
Her mom passed.
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My mother had dementia and neuropathy too, while she was alive, but she wasn't reliant on opioids. In reality, nothing helps nerve pain anyway. These two conditions are particularly difficult because doctors know little about them, there's no cure and no real relief for either. My mother did experience pain in her legs and feet which she complained of constantly, and wound up wheelchair bound as a result. The neuropathy caused her chronic vertigo which, when she went into a wheelchair, finally resolved, thank God. The dementia made her constantly question why there was no relief for her legs. Cymbalta did help the neuropathy considerably, but it worsened the dementia to the point where she was falling even more than usual, so it had to be discontinued which felt cruel.

I'm very glad my mother is at peace now and out of pain and confusion, and I hope you are relieved for your mom too. That was no way for the poor souls to live.
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You say that you are looking for someone who had the experience of caring for someone who had both dementia and neuropathy. I have not myself had this experience, but am wondering exactly why you wish now, after your Mom's death, to know of others? I am assuming you did the best you could for and with your Mom as she dealt with these issues. While others may have the same conditions, a person's individual reaction to illnesses and mental loss are so individual as to be like their own fingerprints. Your Mom is at peace now, and you have my sincere condolences. I am just curious what outcome you would expect to find help with in knowing how others dealt with like conditions? Are you fearful that you will be facing the same conditions yourself in future.

I wish you the best. And again, my condolences on your loss. Your mom was lucky in having a caring daughter.
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