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My mom has dementia (partially) and Parkinson’s. She is immobile and has to be carried or pushed in a wheelchair. That’s not the hard part. The hard part is her neediness. She’s constantly asking for the same things and states the same worries. What I don’t understand is that sometimes she can be very coherent. Then some stressor triggers her and here comes the nagging and drama. What I’m struggling with is feeling any sympathy for her. She has never been mean to me. But she’s always been emotionally unavailable to me. I’ve always felt like I had to be perfect for her to love and accept me. I didn’t realize the pressure this placed on my life until I had a breakdown a few years back. Now that she needs me, I simply don’t have any desire to be there for her. She didn’t willingly take care of her parents (who both had dementia and one also had Parkinson’s). She would step up if asked but never with a cheerful attitude. I remember this. She’s never been a cheerful person. I know life hasn’t been easy for her. I just wished we had an emotional bond so I can care for her out of love. Right now I’m resentful and really don’t understand why I can’t get over it and just be there for her the way a daughter should be. I’m seeking replies from those who have any understanding of where I’m coming from. I don’t need judgement. I’ve judged myself enough.
First I have to say that I chuckled when you said that your mom has only partial dementia. There is no such thing as partial dementia, though she may just be early in her dementia journey, as yes folks with dementia do have good and bad days.
And just so you're aware the dementia that usually goes hand in hand with Parkinson's is Lewy Body dementia which is the 2nd most progressive dementia with a life expectancy of just 5-7 years, so she will go down hill quickly and will be much harder to take care of.
With your justified feelings, it may be time to look into getting mom placed in the appropriate facility where she'll be looked after 24/7 and you can get back to just being her daughter and not her resentful and overwhelmed caregiver, as I have a feeling that you'll only grow more and more resentful as time passes and that isn't fair to either of you.
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Reply to funkygrandma59
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I think I was in the "sandwich "generation." Taking care of our parents, while bringing up our child,.
My friend is in the "Club Sandwich " scenario, taking care of parents, wanting to see her kids, and needing to see her grandkids!! I certainly could not juggle that.. I barely could juggles the Sandwich scenario.,
We csn only handle what we can do. Geez, can you imagine what Joe is going through ? And yet, Jane is doing this., ya, I don't know.. some people have more superpowers than others, I certainly can only handle a little.,
most of my plate has been emptied; everyone is gone, except my child who says I'm on my own. She's been there done that.. she's done..
I don't blame her.
. I have my living Trust and DNR, and POLSTand POA Directives on paper.. TAG SHE's IT!
😬🤣
Did I just put all that on her??? YUP!

I absolutely trust that I too will leave this earth.., hopefully with love , kindness, snd laughter ....
just be nice, appreciate the little moments, tell your LOs you live then, thank you..
THSNK YOU! Even the lil misspellings,

when was the last time you saw a double rainbow?
What was the difference between them? Weird, I noticed it., nobody else noticed until I pointed it out..,
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MG8522 said it correctly. Find mom a good place ALF..
you can the concentrate on the things that need to be done; like, being there for your mom as a daughter, living, loving, and caring.. you don't need to stay in the facility for any longer than her energy allows...
mom may be getting tired snd needs to rest.. take her cue of grumpiness and excuse yourself..I forgot I have frozen food in the car, I must go..
don't forget to leave her treats and for her caregivers.. even if it's just a roll of Lifesavers...! But then again they may be a choking hazard..⚠️
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My kid was pulled into the realm of life and caregiving..she had no choice.. the only choice she had was to visit a grandma. Do you want to visit The Who knows who you are and can say hello? Or the one who gazes aimlessly and doesn't act act like she knows what is going on???
You have a choice. You need to go with one of your parents and visit one if your grandmas... I suggest you visit the grandma who can speak...and knows who you are by name.,,,
Life lesson....

When ALL ELDERS have deceased, includes her dad,.... she is basically done...
"Do not expect me to "care" for you."
and I don't.. she is busy creating her own life.. heck, I didn't go through all of that as a kid..,
Grandparents were in another state. Saw them once every 5-8 years.. I was not involved in any of this caregiving scenario.. only what I heard my parents say.. I did not get to hear about my heritage from my grandparents. I missed out.. with that being says, my mom felt guilty by not being there when her parents were going through this. She did go and visit, but she couldn't stay for the long run..same with dad...,
So....
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You don't need to do this, and in fact you shouldn't do it just because you think you should. Move her to the appropriate level of care facility, and reclaim your life. A mother who loves you would want that for you. See an elder law attorney about how to pay for this, if necessary. (In case you need more persuasion, doing all the lifting in and out of her wheelchair, bed, etc. plus toileting or diapering, and bathing, is going to end up ruining your health if you continue to do it by yourself.)
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