Dad, 91, lives at home and has had care helpers for 6 years.We employed full time help 2 years ago to take any burden off his wife. Dad has LTHC and we supplement the remainder. With his ALZ/dementia he is incredibly unique. Still does his own hygiene, plays cards, goes shopping etc. His spouse of 32 years moved out 8 weeks ago into her place in an adult community( 6 miles away) as she wanted to live her life to the fullest. She is 90. She was reported to PS 8 months ago for elder abuse and constantly made life difficult for all the caregivers and picked on Dad frequently .We had to employ a geriatric care manager for a year just to keep the peace between the caregivers , her family and our family.For a few years she had wanted to move Dad into a facility and we refused. Their are 6 kids in our family and we all take turns visiting , staying and helping. She also spent very little time with him while she was in the house. We are relieved she is no longer around . Forget the "for better or worse" as it does not exist here. Things have resumed to a nice steady schedule and Dad is very relaxed and almost better. But... she dictates to us that she can come and go as she pleases. She was added to the title of the house when Dad remarried (after Mom's death) and yes they are still married.She left tons of her items and stuff all over the house. Two bedrooms she occupied are left in shambles and Dad is always looking in them and wondering what is going on with all the mess. When she pops in and appears she causes agitation and confusion.Dad can't figure out where she is going and why she is leaving all the time. She is the one who went and told Dad she was moving out to live her life, yet we do not discuss it with him using those terms. His doctors currently are in agreement that we just keep saying she is away visiting family. Yesterday she arrived to move a few more bags of stuff and then told him she was leaving for Florida for three weeks. He became upset again and has stated she might as well just not come back. This leaves the caregivers with trying to distract. re-direct and cheer Dad up. What can we do ? He lives in Pennsylvania. Does Dad have any rights or must this be the way he exists ? We do not have a good working relationship with her family. Thank you.
I would ask, what was your families reaction when she said she didn't want to care for him in that way any more? Did encourage them to move together, perhaps to a facility that would offer various levels of care? Often the elderly have to separate in their final years because one spouse needs a higher level of care, it doesn't mean the marriage is over or that they no longer care about each other. You say he has alzheimer's yet you seem to deny the reality of his dementia, when he is confused you must continue to cheerfully offer a plausible explanation and redirect. She has rights as his spouse that probably supersede yours, what is it you want to accomplish?
No wonder your Dad's wife picked on your Dad, she wanted them both to move into some place safer with on-staff caregivers. She knew what the future will bring. Even though you are all taking turns caring for your Dad, eventually it will be narrowed down to one grown child who does 100% of the work. Just wait, it will happen. Anne, are you ready to work 3 full-time shifts per day? Alzheimer's/Dementia does get better, it only gets worst.... and the different stages can change to the next stage very quickly.
My parents had lived in a single family home up into their 90's, and I know my Dad was to the point where he knew he could no longer keep maintaining the house.... the "honey do" lists keep on happening and there he was at 94 still climbing ladders, scared to death doing so, and doing yard work. But he wanted to keep Mom [98] happy.
Dad wanted to move to Independent Living but my Mom refused to do so... no amount of pleading would get her to even look at the places, and there were places that were like 5-star resorts. I wouldn't have blamed Dad if he had decided to move out on his own and leave Mom behind, but he was afraid to do that. So each day going up and down those stairs, he hoped he or Mom wouldn't be falling.... but they did, and that still wouldn't convince Mom to move.
Last month my Dad moved into Independent Living on his own... my Mom had died due to complications from a fall a couple of months ago. Dad is still angry that Mom didn't take his advice to move some place safer, as she would have been with him today.... [sigh].
One responder asked what am I asking for? Maybe it is more emotional than legally logical but if visits to his home are disruptive when do his rights to a peaceful existence come into play? Based on what has happened and comments she has exercised hers already. She does not have any spousal POA as she did not want it. Dad takes care of all of his medical expenses and she has stated through an attorney that if he runs out of money for medical expenses he will not assume any financial responsibility. What can be asked for the sake of his peaceful existence? We are only wondering what we could legally expect and adhere to for both of them
Coming to forums like this for advice, both objective and personal is helpful. I have stated before on some of my prior responses that being judgmental in our responses on all of us, by all of us might be help you but not help us.
Have you asked her if she wants a divorce? Will she agree for her belongings to be packed up and delivered to a storage facility of her choice?
Could it be that your Dad's wife knows she is just not cut out to be a caregiver? Not all of us are. In fact there is a good article on the Aging Care website regarding that. Plus your Dad's wife is 90 years old. I have a feeling she felt very outnumbered, thus she left. And the reason for some of her comments. She is scared emotionally to what is happening to her husband of 30 some years.
My boss's wife had Alzheimer's for 15 years, it was in the final 3-4 years that it became very difficult for him. Prior to that she was doing usually well. He had a day care-giver for his wife during those last 3-4 years, but he took on the night duty. Too many times he came into work with having only 2 or 3 hours of sleep, as he was up caring for his wife who wouldn't sleep and who was having issues with incontinence, thus he was washing sheets at 3 in the morning, and showering her.
It's sounds like Dad is well cared for. Can you somehow get all of wife's stuff out of the house so she has less reason to visit? How does she get there? She still drives? Is it worth stirring up a hornets nest with the other family?
That is why we accelerated Dad's LTHC, to take the burden of most of Dad's care off of his wife. Whenever she has , which is about 4 months out of the year total, we have gone in to provide extra coverage for Dad. Her sisters husband had ALZ and was put in a facility for about 6 years and so she is at least an observer of what to expect also. I know this is disease causes 'death" on many levels to many people. Dad states many times, with in- the -moment lucidity, "I have Alzheimers and my brain is dying." We tell him that he is doing a fine job and that those around him are aware of his disease.
The house is large enough that her items could be stored there, even though we as a family have mixed opinions on that. I just wish there was some way to impress upon her or her family the overall negative impact her visits have and might there be a solution. I have experienced myself having to leave my MIL when she was in a home and it was not a comfortable feeling for me and I knew it also upset her. Both these individuals have the right to a peaceful existence. Maybe we are asking for something that just cannot be delivered. But I question if she is even aware of the issues she is causing and if she is, does she care?
The question of divorce would not be acceptable to Dad on the basis of his devout Catholic beliefs. She is not Catholic,but it might not be fair to her either. Her family has stated frequently in the past 6 months that she values her marriage commitment, so I do not even want to explore that. Thank you again for the continued suggestions.
I don't see that your father is gaining anything from this ongoing almost stalemated relationship, but since he's a devout Catholic, perhaps some type of legal separation might work as opposed to divorce.
I would also use a "therapeutic fib" and tell him that you understand she has health issues that could be resolved by living in a different climate, so she won't be visiting as much.
Bluntly, it seems to me that her marriage commitment doesn't mean much to her and that she's essentially abandoning it, except for the storage facility issue.
In the meantime, I'd try to find other sources of socialization for him to ease whatever pain he might feel for what seems to be an abandonment by his wife.
Are you all determined to keep dad in that house, or just to keep him out of a facility? If it is that house, would it be possible to reach some kind of a financial settlement with the wife to remove her name from the deed? Of course, you would need to consult a lawyer to see what the community property laws are in your state. It would seem that selling the house might be the best solution. A house built more than thirty years ago is unlikely to be well suited to elder care. Maybe a different house with wider doorways, larger bathroom and no steps would allow dad to avoid a facility for a longer period of time. If the wife visits dad in the new house, it would be just a visit, with no discussion of storing or removing belongings. Would this be less upsetting to dad?
I also think her second paragraph offers excellent suggestions; keep Dad at home, but in an environment more suited to his and your needs at this time.
If any of you can tell kindly inform her that after she leaves, dads emotional state is rocky and that his stress has zero to do with her- but his inability to understand her coming and going because of dads ALZ.
Then instead of offering a solution (which as you "felt" by responses here, i.e. being judged); ask her if she can help by maybe forewarning the visits so dad can be preoccupied?
At her age and 32 years of marriage and HER home, HER husband-- even if shes seemingly horrible, i cant imagine how i would feel if the children took over dad under my roof. When my dad hit rock bottom and mom was beside herself, we moved dad out per her request. Into a rental home close and all the children helped.
But like i said- no judgment because each family dynamic is tricky and walking on egg shells is an art!
I would love to get rid of my sister-- but alas-- its not about me, its about mom.
"Dad wanted to move into a luxury 5 star step down community over 10 years ago but his wife refused. Then when she finally decided she had him sign one for $500K , she changed her mind and lost the $40 K on it."
Sounds like there will be a huge amount of money left when your father passes and that alone may be the reason to hang about. That said, it may be her children, expecting a windfall, are pressuring her to keep her belongings at the house and check up on it and your father's condition. Just my two pennyworth.
She lived about 6 houses up the street and felt she knew all about Dad. She had been widowed for 10 years, sadly a young widow at that. Dad had another house on a lake that was purchased by Dad and Mom( that is where Mom died.) His new wife said she wanted a new home and Dad resisted, but was delighted to call the lake home"theirs". It was sold about 7 years ago. Last year we asked if we could research widening a bathroom door, putting in grab rails , adding banisters and to consider making a first floor bedroom. We were allowed to do the first three but we met with resistance on looking to secure any first floor sleeping area.Hen she went away for a month she told Dad to stand in the way of anyone who tried to do anything in the house! I laugh as I think he was puzzled by that. The house is roomy but by no means state of the art. I would imagine someone might come in and totally re-do most of it as it has aged. I would like to consider moving Dad to a smaller house but I would wonder how he would react. It would take time and patience and with the same caregivers around it could be an excellent idea. Maybe a rental home would be a good idea, but she would have to agree to sell the current home.
Visits and driving: We asked her family to assist us in a a discussion on visiting and advance notice. Sometimes they help and sometimes they tell us to talk with her ourselves. She lost her drivers license about 2 years ago after 4 accidents . I know that is tough as I had to watch Dad actively give up his license 10 years ago when he realized he did not want to be a road liability to someone else. She has a driver she will hire for appointments and has relied on people in her new community to drop her off and pick her up. Also, sometimes the local daughter might help.
The last 3 visits have been unannounced and she spends about 10 minutes with Dad and an hour with her stuff. The visits I have seen are about the same. Maybe it is because she has to pay a driver??? The caregivers keep an eye on the whole thing and are very accommodating, even offering excuses for her absence. While I am probably a pack rat she too is a hoarder and her family says they will deal with it someday. The bulk of her first house still is in the basement. So she spends lots of time going through suitcases of junk mail, magazines and plastic bags stuff. Thats not a criticism...it is an observation. When she leaves with a bag of stuff their is no real pattern to her departure. She might ask the caregiver to help her or walk by Dad with the items. He might ask where she is going with her stuff and sometimes she just keeps walking and does not answer.
I will try again to request some sensitivity to the visiting schedule. She largely ignored the request from the geriatric care manager. She has stated that she will not be held to a schedule but one never knows.
Also, I would seriously like to give him the answer that she moved to Boston to be with her son for health issues....but what do I say if he feels like he failed her as a husband? He already has said that in the past when he thinks she has been overworked....and then he says well maybe I should be in a" box." So unlike him, but obviously very symbolic of gender roles here!
You have been very kind in responding. We might be a dedicated family but we did not interfere with their marriage or home...we were all busy with our own. It has only been in the last 7 years when we observed that he was needing help and was not getting it.
As for her belongings, how do you even begin to divide the shared possessions of a couple like this? There will certainly be some obvious heirlooms, but the bulk of things would most likely have been accumulated during the marriage.
I think the real problem here is his distress over accepting their new reality. While it might seem like it would easier if you could wave your magic wand and make her disappear, it is possible that he would continue to fret and worry about where she is and what she is doing.
I agree with Babalou that it might be worth while to have a discussion, perhaps using a neutral third party, with her and her children and explain that her visits are causing problems and plan a strategy to remedy that, maybe by limiting their timing or duration or the topics she brings up.
But frankly, this woman sounds very self absorbed, and a user. I personally would be getting tired of what I see as only partially cooperative behavior from her family. And I'd make darn sure that his estate plan is up to date, including addressing the fact that she's an absentee wife.
I'm really surprised at the amount of stuff she's left in the basement. I would also start getting rid of that; you're not running a storage facility, and having all that excess stuff is just more stuff collecting dust. You can tell her and/or her family that you've been advised by one of your doctors (or even make up a story about APS having been contacted) to get rid of all the stuff as it's not healthy.
I can't help thinking "money and assets" and manipulation though.
What a mess, she will continue to be tied to the home as long as it is full of her stuff, and of course she feels you have no right to limit her access to her home! The best solution would be to move him out and clean house (literally), but at this stage of his life I understand your resistance to that. I worried about my mom's reaction when I sold her home and moved both of us to a new shared residence, but she made the transition surprisingly well. You mention he wanted to move years ago, would he still be willing to downsize?
If husband and wife are negatively bonded and family messes with this dynamic, then family is to blame for the current unrest.
Respect their marriage. Ask the wife wgat she wants you to do.
Personally, I agree with Jessebelle's observation.
Make more of an effort to make his current living situation better and safer for him.
Does he currently have any live-in help?
He is there, a major portion should be his area.
Or, think of her assigned portion as a smaller, separate entrance apt.
They are not yet divorced or legally separated? Save her a spot. If she sees that she has an area, she may feel less threatened, less territorial, and stay away longer. If a legal separation occurs, she has abandoned him.
Taking charge of Dad's assets is important to minimize her destructiveness. imop.
Hahahaha, thanks so much for that vivid image and a great laugh!